Update

My computer is still dead, the hard drive died entirely and after almost two weeks of trying to get life of it (and luckily getting all the data) I had to admit defeat and take it to get a replacement.  It should be fixed sometime this week.

Meanwhile, my father is back in the hospital but still in Tampa, Florida.  They can’t figure out how to physically transport him without risk.  So Friday (or possibly earlier if he gets worse), Mom and I will drive the lengthy route down there and if we’re lucky be able to bring him back with us or at least take him to the next Army staging point which is one of their hospitals in Georgia.  I will have my mom’s laptop with me but she has problems getting onto his internet down there so it may be dialup for us.  (And anyway three of us in a STUDIO apartment up TWO flights of stairs — I can’t even bring my wheelchair as we’re all too crip to get it up and down the stairs — may drive us to murdering each other.  At least we’re a stone’s throw from the beach!!) 

So it may remain quiet around here for a while yet.  Thankfully I have had a lot of crafting time and a 30+ hr round trip drive (maybe more if we have to detour to the other side of Georgia on the way back) will give me plenty of time to get my sock knitting going.  If anyone reading this as Isela’s basic toe-up pattern (that you get with her sock looms) and knows how many stitches to cast on to start, I’d love to know — it looks like 18 but then peg 19 is supposed to have a loop on it already so I am confused.  I’m going to have to keep going cuff-down until I figure that out.

And we’re not even going to talk about the mountain of crafting supplies I’ve bought since I have been here.  My luggage is going to hate  me!!

But enough of that, I have my diabetes classes this week so have to be up bright and cheery, plus the CFS/Fibro self-help course starts tomorrow too, so I need my beauty sleep!

I haven’t read blogs since I got to the US but I hope everyone and all their loved ones are healthy and happy.  Best wishes to you and yours.

Safe and almost Sound

Just a quick note to say that I am safely arrived in America (despite an unusually gruelling trip). However, my computer did not arrive intact and needs to go to the shop to fix (or worst case replace) the hard drive. I have my data backed up so this is more of an inconvenience than emergency. But still, I may not be online much until it gets fixed — or maybe I will as Mom’s work is loaning me a MacBook Air until my Mini is back from the shop, wheee 🙂 But I may still have problems accessing Mail and the like depending on how much I can recover from that hard drive before it goes into the shop as my backups are in the UK and will take some time to get here if needed.

Have done a ton of crafty shopping today, mostly books, magazines and second sets of supplies that are going to live here at my parents house so I don’t have to keep dragging things back and forth across the ocean (beading pliers, Knifty Knitters, etc.). And 10 skeins of Lion Brand Homespun, at last! Now to find a Serenity loom if we make it to a Hobby Lobby (sadly, an hour or so away from here), or to ponder an afghan or prayer shawl loom from somewhere else if it would get here in time before I leave (which may be as soon as 9 weeks from now). Meanwhile I have the Fine Gauge double rake from Decor Accents to play with and 15 balls of Peaches and Creme so many dishcloths are in my future! Still waiting on the DA single rake and sock loom which should get here in a week or two.

Oh and did I mention that mom gave me a yarn budget of $200? (Not counting the Homespun or anything else that is being made for her.) Yaaaaaaay! I love being a spoiled only child!!

BTW the trip to Tampa, Florida is back on but Pennsylvania is still cancelled. My dad’s colonoscopy is on the 29th so fingers crossed that the news is good. They did find that he had a massive infection of the intestines requiring IV antibiotics so maybe, just maybe, that was behind the mass they had seen on tests before. *hope hope* It may be something like Chron’s or Diverticulitis but those are very manageable and certainly less life threatening than cancer. So he’s not coming home for the summer and we’ll have to go visit him. He retires from the Army in December so will finally get to come home for good then, no more tours of duty!!

But first up I have to finish the item for the Functional Felt Swap and mail my ATC for the Creative Mom swap. And get my computer fixed. So until tomorrow…

News

First, thanks to those who donated for my Fibromyalgia walk, I am pleased to announce that I exceeded my goal thanks to the help of Denise Layman talking about it on her blog and offering a raffle prize 🙂  Pictures will be forthcoming once I steal them from t’s Flickr.  

My dad’s health is getting weirder.  They couldn’t find the mass/alleged tumor on the CAT scans so now he’s scheduled for a thorough colonoscopy on the 29th.  Maybe the mass went away?  It’s a medical mystery at this point.  But until we know what it is, the Army is keeping him down in Florida, so it looks like I will be headed to Tampa after all.  Don’t know for how long.

My health — which I try to avoid talking about too much for fear of turning people off — is getting worse in a number of ways and my mom and t think that since I’ve already cleared my schedule for four months it might be worthwhile me staying in the US for some private treatment that I can’t get here on the NHS and so that we can do family weight loss efforts together since it’s getting to be life threatening for my dad and so I’d still be there to support/harass him (if they let him come home or I go to him).  I’ve only managed to lose 8 pounds in the 10 weeks since I was diagnosed with Diabetes so I need to step it up more too as there’s still 40 more to go to be officially in the healthy range.

So it’s still unknown just how long I will spend in the US, what part of the US I will be in when (NC or Florida) and whether I will be over there for my treatments or my dad’s or both.

Thus I may be fairly quiet here until I get to mom’s house on the 25th.  I have swaps to make stuff for, packages to get out and the gargantuan task of trying to pack for 2-4 months in one suitcase and one carryon.

Prayer request 2

I just got off the phone with Mom and it looks like it is cancer and they may not be able to operate because of his problems with blood clots in the lungs a few weeks ago.  Even if it’s *not* cancer (we will hopefully find out next Tuesday), he’s still having major problems and they still might not be able to operate.  It’s so serious that the Army is considering sending him home as he’s going to need care.

So my summer of getting care and giving t a carer’s holiday is turning into me looking after me dad and my mom looking after us both. I may also need to stay indefinitely, probably at least through September. So I guess I need to lay in a lot more craft supplies.  Send sock yarn 😉  There’s going to be a lot of sitting in hospitals waiting around this summer, no matter what :/  And lucky me has to remember how to drive again as I’ll have to be the one to drive him to radiation, chemo or whatever they decide to do as Mom only has limited time off.  I haven’t driven anything bigger than my power chair in 5 years so this will be a challenge :/ Mercifully I still have my US license and insurance.

So whoosh, this is kind of heavy and I’m in a weird headspace at the moment. We’re trying to save so that t can go to Australia to see HIS dad, who is still waiting for a kidney transplant, and now my dad has gone from having a minor little cancer that was mostly in remission to possibly having a big huge cancer that they might not be able to treat very well.

This totally sucks.

Getting Ready!

My walk is tomorrow!  Please consider donating!  I lied about wearing my sequinny All-Stars, it’s a bit too hot and t managed to fix my broken Z-Coils (sandals with springs in the heel, much easier on the back) so that’s the plan.

I’ve started making thank-you cards.  Not quite satisfied with the design yet but I’m still working on it.

I’m also starting to make my packing list for my trip.  I’m trying to be minimal about what craft supplies I take — tools only — but when dealing with things like hand carders and jewelry pliers it’s starting to stack up :/  I need to be less than one suitcase on the way over and will bring three home but one of those will be mostly magazines and the two small quilts we plan to make, plus I’m stocking up on pillows as I can’t get the ones I like over here.  I vacuum seal them but it’s still a lot of bulk.

Homestead Wool and Gift Farm got another batch of new fibers today so I finally placed an order. Several pounds of fiber, about half raw and the other half roving.  That should keep me for most of the summer for spinning and felting, I don’t know when I will find time to dye, quilt and embroider! My beading stuff is mostly going over to do the annual repairs on mom’s substantial collection, including re-knotting all of the pearls this year.  

But I’m worried that we may spend a few weeks in Florida in the hospital if my dad doesn’t get better.  He has a mass that is squashing his intestines that they don’t know what it is yet. I think it’s a hematoma like Helen has, but there’s a chance it may be cancerous 🙁  Anyway I may also be stranded in NC when I first arrive as Mom may be down in Florida with Daddy. (Remember he’s only in Florida because of the Army, he’s due to retire any day now but they are keeping him down in Florida until this health crisis is over which may be many more months. So Mom goes to visit as much as she can.)  So I need a lot to keep me busy as my looms may not be in by then!

I also have a ton of beading work to do for her before I go. I don’t want to take beads over if I can help it, so all of the stuff I have bought to make things for her needs to get done next week, ideally.

Plus I have two swaps to do (already started on both but need to finish) and two care packages to send out (Project Superstar and Purlpower).

So I am a very busy bunny the next few weeks!  But unfortunately my body has other ideas and is making me rest a lot so I’m just going to have to prioritize.  But just right now I have cards to make and emails that need writing, so I’d better be off!

I’ll leave you with a picture of some of the fiber I have ordered, a beautiful white baby alpaca…I bought a pound but there is still more for others!

Photo Courtesy Homestead Wool and Gift Farm

I can’t believe it’s not Monday

We had a nice Bank Holiday Weekend (three-day weekend) here, the weather actually warmed up — rather too fast IMO — and the sun has been coming out more than in the last nine months put together.  Which has actually made photography a little difficult, I’m not used to full, bright sun!

Anyway, important reminder: My 5K walk for Fibromyalgia research is on Saturday so please donate now!  If you are new to this blog, Fibro is one of the many diseases that I have and walking 5K is well beyond my normal limits but it was important for me to do this as it’s a very worthy cause.  You can read more about my struggle on the donation page linked above.

So meanwhile, back to other things. We went to the National History show which was genealogy, archaeology and military history all together in one Expo.  Once again I was shocked that no scrapbooking suppliers were there as that seems like a great audience.  We saw some of the Time Team members (Tim, Tony and Phil) doing various presentations and generally found out about new stuff out for the genealogy market, etc.  The only thing we bought was mead from Three Drunken Monks but then we went to the huge Whole Foods in Kensington to stock up on supplies.

I’m still recovering from that day even though I was in the chair. I also seem to have come down with some kind of stomach virus which is unpleasant to say the least.  So my crafting has been pretty minimal.  I made two coffee cozies (which I would show you but my camera doesn’t like bright sun apparently, the colours went all weird) and started a legwarmer for a friend but I started getting hotspots on my fingers so had to give it a rest.  When I can’t knit or do something productive I feel guilty or at least out of sorts while sitting and watching tv or movies but sometimes my body just needs the rest and there’s nothing I can do about it.

I’m off to lay down again and get more rest.  I need to plan the route for Saturday’s walk ASAP and just spend the week resting up that’s going to be very, very taxing.  But I have so much crafting to be done in the next few weeks that I’m already feeling the stress and need to get things done for the sake of my brain,so we’ll just have to see what I can manage in between naps!

Order up!

I finally ordered my first “big girl” looms from Decor Accents — an extra small gauge straight rake for dishcloths and an extra fine gauge sock loom (will fit me and t both, yay!) to be delivered to my mom’s house. Now to find some cheap sock yarn to practice on — anyone destashing? Mom has already bought something like 25 skeins of Peaches & Creme for me (she went to the factory outlet unchaperoned and went a bit crazy!) so I’m good for dishcloths for now 😉

I’m sure I will eventually get plenty more looms — I’m especially hoping that Duxall Inarow (love that name!) will resume producing her stunning rakes soon.

I’m also going to try my hand at crocheting dishcloths this summer as I’m feeling a lot more confident wielding a hook now after using it so much for casting on and finishing things on the loom. I sooo need a light-up hook for the road trip, methinks 😉 (Oh yeah, forgot to mention we’re driving to PA — I have a sneaking suspicion that there will be many quilt stores on our route!)

Sorry I’ve taken so long with getting all of the Paris and spinning class stuff written up but t and I have a stomach virus right now so we’re behind on everything — except our tv watching 😉

Support London Crawling!

[crossposted]

As many of you know, I suffer from a condition called Fibromyalgia among many others. Fibromyalgia — called fibro or FM for short — is believed to be a disease of the central nervous system. People with this condition suffer intense, widespread pain and crushing fatigue. It can completely disable a person and destroy their lives. Up to three percent of the population may get this disease at some point in their life, although many go for years without obtaining a proper diagnosis. There is only one drug so far (approved in the US only) and that only works for a percentage of the population and only dampens some of the symptoms. We usually have pain every moment of every day and can find it difficult, perhaps even impossible, to find the energy to get out of bed, dress or leave the house. It is not a lack of willpower, but a chronic, permanent illness. It is like having the worst case of the flu you have ever experienced and it never goes away.

On the 10th of May, the National Fibromyalgia Association (US) is hosting a walk to raise awareness and funds for research. They have called for others — yes, even in other countries — to help them as Virtual Participants, and I am organizing a team. Walking for me is still a painful process, but I am committed to giving my all in support of this cause. Please honour my pain and hardship (it will take me at least a week to recover) with your support.

London Crawling is a pub crawl through the West End on that Saturday evening. We’re going to walk our 5K (hopefully, fingers crossed!) but take regular breaks to sit down, rest and perhaps have a half. (Alcohol not required, indeed not recommended for many on certain pain medications!) It’s social but socially conscious all in one! We’ll also be pointing out things which are hazards to the mobility impaired along our route for those who have never had cause to notice such things before.

Join our walk, either as an official Virtual participant (Cost: US$35, a non-tax deductible donation, you get an official t-shirt and your name on the virtual walkers roll) or just come along and make a cash donation. Perhaps you can match the pounds spend on beer with pounds given to Fibromyalgia research?

If you’re not in London, I urge you to become a Virtual participant anyway. You (apparently) don’t have to even walk. Maybe just walk virtually 😉 Second Life anyone? You can still be on our team even if you can’t crawl with us in person. Join in and help raise funds for this very worthy cause near and dear to my heart!

If participating doesn’t appeal, then I beseech you to consider donating. My personal sponsorship page has some more details of my personal struggle. You can join our team at the London Crawling page. You can donate either to me or to the team. And if joining the team, you can walk in my honour or anyone else you know with fibromyalgia. Let me know if you want more details for that part of the form.

Please spread the word!

I know the fad now is to offer prizes draws to those who make donations but I am not in a position to offer anything special. But I will promise a hand-made thank you card to any donor who requests one. These take my time and energy and can be a bit painful in the making so I hope that this gift will be as meaningful to you as anything else on offer.

The NFA has already helped make my life better and continues to search for ways to improve the lives of allof us with fibromyalgia. Please contribute today to keep the ball rolling and fight against this dreadful disease! I believe that donations are tax-deductible within the United States.

April in Paris, part 1

So we’re back, and yes we had a lovely time.  Mostly because we abandoned all plans except eating (hitting many of our old favourites) and shopping in what craft stores I could find.  We had some problems with the wheelchair not liking the steep hills (it drained the battery very quickly) so t had to push a lot, and it poured down rain for two days, but in general it was a pleasant and relaxing holiday.  It’s going to take me a while to recover.

Paris has changed a lot in the four and a half years since our last visit.  We used to visit annually when we could afford it (this is not that grand — remember, it’s just the next major town over and only 2.5 hrs by train so it’s one of the cheapest possible vacation spots for us) but I guess the changes seem a lot more pronounced when more time has passed.  I’d read that many French people think that the city is becoming a museum rather than a living, vibrant center of life.  I didn’t want to believe it but I’m afraid it is true.  Maybe models find  places to party but it’s becoming a tourist trap; there are more tourists than locals in most of the city center and the shops and venues have changed to reflect that.  It’s a little sad, really.

I certainly won’t say don’t go if you have never been.  I won’t even say that I won’t go — I’m always researching the history of Paris and/or using the museums as resources for other historical research.  But just to chill out and mellow, I think we’ll go to Provence or back to Italy (where I lived for a while).  Or who knows, maybe somewhere out there is a city that really is wheelchair friendly. I’m not holding my breath on that one though!

We’ve got about 500 photos to sort through and tag, but I’ll try to post the crafty ones (shops and my purchases) as soon as I can.

I’m trying to catch up on everyone else’s blogs so bear with me!

Coming out for Spring

I know I have been very remiss in my blogging endeavours, but I have to plead illness.It’s been a very hard month+ for me and talking to people is one of the most difficult things at times so I’m afraid I have just been hibernating away. But today, perhaps because of the spring weather (oh how I wish it were going to last!) or perhaps because I saw mallard ducks in my back lawn (why I have no idea and sadly I didn’t have my camera with me) or because I have a lot of announcements, I have finally felt like talking to the world at large.

But before I say more about what has been going on, here are some piccies for your entertainment:

Scarf for Mom

Scarf for Mom -- Detail

That is a scarf that I made for my mother last December, didn’t photograph until February and am only managing to post about today. It was made using Trendsetter Yarns Blossom using the Alternating rib stitch (5 rows each direction) on the Knifty Knitter long yellow loom. At least, this is how it looked before I washed it and sadly it is far more anaemic looking now 🙁 I’ll try to photograph it again to show the difference. t says he can’t tell and looking at the scrap yarn I can’t tell differences in the strands individually, but it just looks less fluffy 🙁 I’m very mad at myself for chancing a machine wash (delicate cycle) on a handwash yarn, even though I know my mom will only machine wash it anyway. I feel like I screwed up US$45 worth of lovely yarn and am really beating myself up about it 🙁

Beating myself up about things is sort of the theme lately, as that’s part of what happens in my depression cycle. The big D is what has been making life  miserable lately (mentally and physically as it increases pain levels). I’m not really going to talk about it much here as I know people don’t like hearing about that very much and so I’d rather save your illness attention spans for when I may need it in the future 😉 But I’ll just say that it has been the worst episode ever but finally my meds are adjusted and things seem to be on an even keel again. I still don’t feel that my meds are quite right, but I plan to study the meditation course for the prevention of depression relaspe so hopefully the meds will become less important in time.

The big news is that I have decided to go to America for a while this year. Normally this wouldn’t be news as I spend between 5 and 10 weeks a year there but I had actually been planning to *not* go over this year and have my parents come visit me instead. But my dad got sick (another reason I have been silent online is being stressed over him being in the hospital, etc.) and can’t do a long haul flight for a while and now my health problems are just getting to be more than t can handle. We’re going to have to look into getting me a carer but to do that I need to get disability benefits and that’s going to take several months so the temporary answer is that I will be going to the US to stay with my mom for two months to give t a break, then she will come over here for a few weeks to get some stuff organized so that we’re in a better position for the future.

SO: I’m going to be going to North Carolina from late May (ish) to the end of July (ish), with stops in Pittsburgh (and maybe Philly) and Tampa to see my dad (and maybe Disneyworld, that would rock!). I’m going to work on my knitting, practice spinning and maybe do some re-enacting. Also probably doing some scrapbooking and maybe a bit of quilting (Mom’s a big time quilt freak). And buying craft supplies. Oh yes, the best part! 🙂

All that comes after our trip to Paris next week though 🙂

I have more to talk about but I must rest my hands, my spinning class is tomorrow so I can’t afford to be crampy! 🙂 I’ll try to post again soon, really!